Sundays are for gettin’ shit done

I don’t think I got anything done yesterday (besides some online Christmas shopping!), but today was better in that regard. And in lots of other regards.

I woke up around 8, took my meds, recorded my mood info on my apps, got dressed and ready for the day, got my coffee. Typical.

But I checked off a few good habits from my list. Made my bed. Stretched my aching body.

Oh, I painted my nails. I picked out a few outfits for this week (a practice I was into back in my high school years…laying out exactly what I was going to wear because that’d be one less thing to think about during the chaotic week ahead).

I got some volunteer work done. I took one of the last tests for my class.

Texted with various people. Went out with my boyfriend just so we could say we left the house haha.

I’ve been reading more, which is good. I tend to start books and not finish them (hello, hi, I have ADHD) , and even though I usually beat myself up about that or make it a goal to NOT do that, I’ve stopped feeling guilty about it. And it makes me a happier reader. And besides, they’ll always be there for me to finish later, AND it makes finishing books that much more satisfying.

Monday 11.9.20

In other news, we finally figured out what’s wrong with my body. Apparently my bloodwork showed my rheumatoid factor was as high as it could possibly be (over 100 when it should be around 6…yeah, SIX). And with that, and with a few other tests, the doctor concluded that it’s rheumatoid arthritis.

I’m glad it has a name. I’m glad there’s a reason why I can’t hook my bra or lift my legs to put my underwear on (and then my pants, and then my socks, and then my shoes, and ugh holy shit).

I asked her why I have it, what I did wrong. She said I didn’t do anything wrong lol, it usually happens after the body goes through some tough shit, like having surgery or giving birth. I didn’t experience either of those, so go figure, but eh, maybe starving myself yet again for a few months had something to do with it? Whatever.

There’s a medication I can take to help the arthritis. Another pill (twice a day). Add it to my collection. It literally looks like I have a whole pharmacy on my dresser. I’m not mad; it’s worth it to be able to MOVE and FUNCTION haha, but yeah.

oh hey, positivity

The meds won’t kick in for a few more weeks, so in the meantime I’m on another steroid to help ease the pain. The last one really helped, which is a testament to how inflamed I am (oh joy), but you might recall me mentioning that I was rather moody.

That IS, apparently, a thing. I felt a lot better when I realized that was probably what was going on. Although I of course started to question myself and be all like “well maybe I’m just imagining it.”

Like. No.

I’m on a small dose of steroid, but I’m finding that I’m pretty sensitive to it. I’m irritable today. Just the same as last time.

I talked to my psychiatrist about it. She said to trust myself and do what feels best. It was nice to hear her say that she thinks I’m self-aware. Mostly because I don’t really know this woman. I’ve never met her in person (thanks covid), and just, ahh. Whatever. I’m just glad she gives me the meds I need now.

I’m excited to talk to my therapist tomorrow about, well, about all the things I just wrote about. It’s always fun to process things. It’s even more fun for me to process things with my therapist (who’s so fucking cool). Added bonus when I’m process things that aren’t terrifying, terrible depressions or all-consuming anxiety and whatnot.

again

I am completely exhausted. Insomnia has finally given way to excessive sleeping, or maybe it’s just because I’ve been taking multiple doses of multiple sleep aids every night, starting at five, just to become unconscious. I don’t want to have to think. Although I say that as if thinking is an active process at this point. It’s something that just happens. I’m dragged into it. The thoughts come in, rising like floodwaters, forcing me wherever they want me to go. My moods move in a similar, violent fashion, dragging me with them in a deranging pattern that seems never to end. I’m scared, as dramatic as it may seem to say. There’s no other way to describe it. Nothing else seems to capture what this feels like, although everyone I come across who sees my dead expression and my body twisted with anxiety seems to “understand.” Because, apparently, they’ve felt the same way at one point or another. I need that to not be true. Because if “everyone” feels this intensely terrible, then what in the fuck is wrong with me? Have they really experienced the painful ripping of their sanity from their brain? Repeatedly? Have they suffered the debilitating fear waiting for it to happen again? Have they been pulverized by the gravity of the rage within them, caused and quelled by absolutely nothing? Have they collapsed into bed, exhausted from staring blankly into space trying to summon the will to move. Have they laid there in agony that stems from nowhere, that goes on without a beginning or an end, an explanation or a solution? Cried empty tears for hours? Heaved heavy sobs until the accompanying headache stops them in their tracks? Yes, sadness happens to all of us. And yes, even depression can be felt by those still lucky enough to not have bipolar disorder. But do not. do NOT tell me you understand. Don’t insult me like that. Don’t compare your commonplace emotions to the colliding hurricanes of unwarranted pain I am tortured into feeling. Your sadness was caused by something, and I don’t deny how much that sucks. But my suffering comes without reason. There is nothing to blame it on, and nothing to repair to try to end it. It is meaningless, but its omnipresence demands it be given a meaning. Confusion rips into every aspect of who I am. My concentration is turned to smoke and dissipates like it never existed. I am sick with it. My appetite is stolen and morphed into disgust. Mr. Hyde to its Dr. Jekyll, they are one and the same, and maybe one is an excuse for the other as goes the moral of the story, but how can I be blamed for the defect thrust into me, for the malfunction that invaded my body and soul like a virus and continues to violate my every moment. Survival is all I can hope for. Day to day, minute to minute. Breathe. Inhale. Exhale. Repeat. It is heavy, the air like lead, but there is no cure. There is nothing left to do. Deal with it. Barely get by, but get by. It requires constant distraction. Frantic, panicked distraction. One wrong thought and I’m paralyzed. One spare moment and I’m incapacitated, another day wasted in the darkness of my mind in the darkness of my bedroom in the darkness of life itself. It wouldn’t be so extreme if it didn’t bring powerful uncertainty and unintelligible, mangled discomfort. All-consuming distress. My deadened eyes announce the signs of visible resignation. The dark bags have never left, and I don’t need a mirror to know they’re getting more pronounced. I scream into my pillow, not actually hearing the blood-curdling slice through the silence. It’s a faraway sound. It might be coming from something outside of myself, but what does it matter if I don’t have a concept of who in the fuck I even am? Spiral again. Spiral further into it. Rather than reaching for relief, clinging to whatever remnants of happiness I can find in my memories, I give up. Relief would only be fleeting. Why bother? Maybe giving myself up for consumption will get this whole ordeal over with sooner. But for now, existing is difficult. Building myself up over and over again is futile, but I have to keep doing it if I want to drag myself from under my covers to the bathroom at least twice a day. My brain is mush, but it’s still firing neurons or something, I’m still alive or something, so I’m left with gray matter leaking down into the rest of me. It’s sticky, and a sickening sight. And it lacks the neurotransmitters that might be some sort of help in this fucked up situation, lucky me. I am left with a mind disconnected, sensations out of my control, moods trying to escape the bounds of their intangible nature, and a stomach ache. Congratulations to me, I’m having en episode.